Wednesday, May 26, 2010

Its been a little bit since I've written. Since my 40th Birthday "Surprise" Party, I had to fly out to Salt Lake for a couple of days and then we went to Florida for a week to visit some good friends and do a little fishing before the dreaded oil slick makes it's way around the state's beaches and reefs. All of us were able to catch up with some great people that we truly miss from our time there. We have kept ourselves busy and so far, I seem to be holding up pretty well. The party was a great success and meant a lot to us. It was so nice to see family and friends, some that I had not seen in quite a long time. I thank all of you from the bottom of my heart for taking the time to be a part of that celebration. It meant a lot to me to visit with all of you.
On the treatment side, the PSA continues to climb and went to 9.9. This was up from 7.7 only 2 weeks prior. The doctors decided to stop the Casodex that I was taking. Casodex works with the Lupron to eliminate testosterone production. It primarily targets the adrenal gland production. By stopping it, they hope to confuse the cancer and slow it's growth. This works in some people for 1-3 months. If it does not work, or when it stops working, we will be on to secondary hormonal therapy. Chemo is still in the picture, but we will try other things before we get to that. The new treatment, Provenge, will likely be tried before we get to Chemo, as well. We were looking at radiation on my right hip, but it surprised me by not hurting nearly as bad as I thought under a good test of fishing and playing golf in Florida, so I hope to keep from going through that until winter. We continue the dietary restrictions and Enzyme Therapy, but won't know for a few months about the results. If my energy and lessening of pain are any indication, the results are very promising! Sorry again for the long break in updates. We intend to enjoy every minute of this summer and sincerely hope that you will all do the same.

All my love,Brian.

Saturday, May 8, 2010

New Spin off Blog!

I have been writing some things for my kids lately that talks to them about what I think is important in life. Some that have read them have told me that these writings may benefit others as well. Since it would be hard to manage this on the same blog, I will be posting them on a sister site, http://allthatiwantforyou.blogspot.com/ . It is also listed as the first link on this site. It will just be essays of these writings as I put them on paper. I hope that they will assist some of you that travel the same or similar path as I do. My intent is not to be preachy or all-knowing. It is just to let people close to me understand my thoughts on important life issues.

As always,
thanks for reading.
All my love,
Brian.

Tuesday, May 4, 2010

Chicago

Teresa and I went to Chicago last weekend to see a Cubs game. I have been to Fenway and old Yankee Stadium with my brother Greg, but never had seen a game at Wrigley. We had great seats and it was a lot of fun to see that stadium. I also made it out to see Mark Knopfler (former lead singer of Dire Straits) with my buddy Dave. It was a great show. Dave and I used to see every major concert that would come through St. Louis, but hadn't seen a show together in 20 years. Both were a whole lot of fun! I still firmly believe that we can beat this thing, but I know it is a difficult path. That is why I stop and smell the roses, or see the concerts, or even go to see a Cubs game that the Cardinals are not playing in. Procrastination doesn't work for me anymore. If the opportunity arises for something I have always wanted to do, within reason of course, we find a way to do it. We are in the process of switching up our treatment plan. I have an appointment with the Oncologist today followed by a Pamidronate infusion for the bones. This will factor in to where we are headed, but we are already starting to pursue an enzyme therapy that is showing good results for others. Nothing else is working, so the search continues. We feel good about this approach and, while there are never guarantees, we believe that I can be healed. We just need to align a few stars and planets. This treatment can be found by googling Dr. William Donald Kelley or the Kelley Therapy. Dr. Nick Gonzolas uses a similar one in NY, but this is the original and the real deal. We will also add the juicing of many vegetables to this for an assault of good nutrients and enzymes. The idea is to put my body in the strongest position to fight. The Kelley enzymes remove the protein shield from the cancer cells allowing it to be recognized and attacked. We are also praying very hard right now. Spirits are generally up, along with the pain in my hip and back, but many others have been stabilized or healed. No reason to think I can't join in the fun. We will also talk to the doctor today about Provenge. Some of you have sent emails about this newly approved treatment and we are excited about it, too. Unfortunately, it only provides a delay of about 4-6 months, and not a cure. But if we can use this delay to allow other treatments time to take hold, maybe we can spin it into a real miracle. I will post tomorrow about the results of todays appointment. As always, take care. I love you all and will post soon.

PS - For those interested, the News and Exciting Developments tab of this blog have an invitation to a party on Saturday May 8. Any and all are invited. I hope some of you can make it. Just email an RSVP to brianpca4@gmail.com.

B.