It's been a little while since I have updated on where things stand. First of all on the medical front, I have to second the opinions stressed on other blogs and forums that, before someone makes a headfirst assumption about Hospice based on just end of life stereotypes, that they are missing the most important and course changing aspect of the "treatment" end of this service. I know they are not supposed to count as treatment, but simply adding Predisone to reduce inflamation has allowed me to reduce pain meds, which has allowed less fatigue, which has increased appetite, which has increased energy, which has reduced constipation (somewhat). I feel like this is a list of all of the begats in the bible. But in a way it has given me a new quality of life. That is one, if not the biggest of Hospice's biggest goals. It has allowed us to look and react at med changes immediately to make the biggest impact. I still have no delusions where the end of this goes, but I am extremely grateful for the kind and skillfull care along the way.
The other part is that we have had to make some major remodeling to our basement to accommodate some help from my father and brother -in-law. My Dad and Brothers have attacked this project like they needed it for their own shelter. They are retired or work full time jobs or sometimes both and they have done a first rate job with, unfortunately, very little to no physical help from me. It will be a very comfortable pair of bedrooms with an additional full bathroom that will give Teresa the help from her Dad that she desperately needs right now with a very full schedule and a very important ally should something happen to me in this terminal illness. It does take some getting used to though. Helping plan out a major remodeling project of your home that you won't get to see a lot of. I fully expect to see the completion and to see this project in place for quite awhile. Don't get me wrong, I'm not marking the finish of my basement as a major lifetime milestone, but it is planning areas for somone else to live in, probably long after your gone. Kind of makes you wonder, from a fairness standpoint, how many shots to call on the long term parts of it. But as long as I'm alive, I will continue to live as if I will until I'm called home, whether that be 6 months or 40 years. So your stuck with me until then. :)
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