Thursday, March 29, 2012

Various Developments

A few developments have come about since with last spoke. A man named John A. who blogged and posted under a couple of forums when I was diagnosed recently passed away. I found him via David Emerson at "The Big C" which is a blog that this one is linked to. John was always a welcoming soul that helped newcomers like me at the time to keep things under perspective instead of freaking out without all the information that I needed. It is scary enough without having an idea of what you have really found yourself in the middle of. He also managed to keep himself very well informed on clinical trials, the efforts and results of others in their battle. He was a true warrior in this battle and one that will be greatly missed. His last gift was that he blogged the last several days of the rest of his life. So many blogs drop off as the time gets near and rightfully so, but he he gave a picture that so few have ever given of what happens at the end of a prostate cancer battler's life. It can be found at John A's Last Days at http://advancedprostatecancer.net/?p=3135 . I'm sure if you search further, you will find many other tributes to John and his wife. On my medical issues we have chosen to go with more of an supported care as opposed to straight Hospice. The biggest reason why is that if I need a Blood Transfusion, I may not be able to get it in a timely manner. The same goes for blocked Nephrostomy Tubes at my Kidneys. If those things can't happen when they need to because they have become treatment issues instead of quality of life issues, my quality of life could dwindle rapidly since my life could come to an end very quickly. It may not have become such a black and white issue, but the decision had to be made once on the transfusion and twice on the Nephrostomy Tubes. We were being told we may be pushing our luck a little. So I think this will help that situation. Doesn't change much else. Well, it's late and I'm tired so I will talk to you soon. All my best.
Brian.

19 comments:

  1. Thanks so much for your info on Hospice. So many people believe it is only for your last days. My brother-in-law just passed away from cancer. He was suffering terribly and was told by an Oncologist when his cancer had metastized to his brain that he was not ready for Hospice. He passed away 5 months later with totally mismanaged pain control. This is important information to get out there.

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  2. Great! I have learned something in this article. I just hope that my Alternative cancer treatment center find this amazing and helpful to our patients.

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    1. This is a great post. I really like it. I was looking for something like this and you gave me what i wanted to know.

      Prostate cancer treatment

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  3. This is Brian's wife, Teresa. I don't know how to post on this site so I am just going to try to leave a message in the comment section. Brian passed away on May 12th 2012. I want to write about it on his blog spot but I don't know how. He was such a good man. The viewing and funeral were packed full of people. This is because Brian was so loved and respected. This battle was so difficult. It felt like more than we could take. I think a lot of you are fighting this battle too. You will get through it. You will come out of it a better person. The pain of having to leave this life and the fear of the unknown on how that will happen and how long we have left is so difficult to endure. I can say that even though things were very rough, life was beautiful and good up until the very end. 3 or 4 weeks before he died was very tough and scary because of what was happening with his body. If I were in his situation I don't know that I would have continued the blood transfusions and changing out the kidney tubes for as long as we did. His body just had to keep figuring out different ways to die. That is the only way Brian would have it though. He fought until the bitter end. He is a beautiful soul and I can't believe he is really gone. He died very peacefully. He slipped into a coma sometime during the night of the 11th and then simply stopped breathing the morning of the 12th. We were there with him and it was peaceful. May God Bless You if you are enduring this difficult battle as well. My love and prayers are with you all. -Teresa Wilson

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    1. Hi Teresa, I read Brian's blog as I am also a PCa patient. He really did leave a legacy to his children and us all. So sorry for your loss but a little bit of Brian will always be there for you. Best wishes Dan.

      www.danielsencier.blogspot.com

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  4. May he rest in peace. My thoughts are with you.

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  5. I started reading Brian's blog when my father was diagnosed with prostate cancer. He was such an inspiration and through his blogs, he left his heartprint on people he never even met. Peace be with you and your family and may you feel all the love that is being sent your way.

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  6. Dear Teresa,

    I am so devastated to hear of this sad news. I followed Brian's blogs from the start. You, your family and Brian's extended family and friends are in my thoughts. May you all find peace through this most difficult time.

    Fred

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  7. This comment has been removed by the author.

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  8. If you have prostate cancer, are concerned about getting it, or if you're looking out for the health of someone you love, this article can help. Early prostate cancer is confined to the prostate gland itself; most of the patients with this type of cancer can live for years without any problems. At an advanced age, the risks of surgery for prostate cancer or other more radical treatments may actually be worse than the disease.

    Kavinace

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  9. Hello, my name is Ari, I am a survivor (so far...) of two cancers, a widower of a cancer victim (now re-married..) and is dedicated to fighting cancer, and helping others do so.
    I lived in Toronto, Canada (my family is in southern California), and last year, after marriage, I moved to the Philippines. I am majority owner of a Dialysis clinic, and built a unique cancer clinic, the one I dreamt of having when my first wife was struggling. I took her to Mexico clinics twice, for treatments (which were very successful!), talked to dozens of physicians, and always found lack of properly equipped clinics, which could do a lot better if they were.
    Along the way, I have gained insight of how proper Hyperthermia should be applied. This is a method which doubles the success rate of conventional therapies, and alternative ones as well, provided it is done properly. I have purchased the most powerful device for this, and added two other types of devices, which when applied in the right order, prevent a process of DE-sensitizing of cancer cells to the effects of specific frequency hyperthermia. We also do mild whole body hyperthermia in order to strengthen the immune system (with no side effects),and help reach the right thermo-therapeutic levels within the tumour.(the right temperature simply destroys the tumour...). There are also other aspects to this, biological ones, which for lack of commercial incentive (UN-patentable..) is not pursued by multinational pharmaceutical corporations which control all medical research in the field.
    I also introduced other forms of immunotherapy, and alternative cytotoxic elements, such as Helixor, a mistletoe extract, which has three times better success rate then most chemo agents, without the side effects.
    I can give information about many clinics I learned about, (mainly in Mexico ang Germany)
    If you are interested in getting free advice, please feel free to contact me, @ advancedcancertherapies@yahoo.com
    Thanks,
    Ari Idan

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  10. God bless him. I am following his story from 2010. He is a fighter.
    Kiran

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  11. Same here, I have been following Brian's blog for 4 years. Sad to hear he is gone now but I know he is well rested with God and that he feels no pain anymore...

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  12. I pray the Almighty to cure your disease. Have a look at this interesting article.

    http://medicalinformationforyou.blogspot.in/2013/02/regular-exercise-can-reduce-risk-of.html

    Regards

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  13. Thank you for your heart felt posts. I know it's not much help but there's nothing wrong with taking natural supplements along with your normal course of treatment…it can only help. If you have time read Super Beta Prostate supplement reviews for the details on this supplement that comes highly recommended.

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  16. Thanks for sharing such a useful post.Early prostate cancer is confined to the prostate gland itself; most of the patients with this type of cancer can live for years without any problems. At an advanced age, the risks of surgery for prostate cancer or other more radical treatments may actually be worse than the disease.Pain Clinic San Diego Doctors also help everyone to relief with pain.

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